Flolan is a medication that runs through my central line into my blood stream 24/7. I have been on Flolan since Jan. 22, 2002. It's a difficult life to be connected to a tube and pump all the time. No swimming or rough activities. Changing cassettes, mixing the med, dressing changes, line changes, infections, batteries, tubes, etc. blah, blah, blah,! I don't let it get me down. This medication has saved my life. Before Flolan I couldn't do anything and now my life is almost normal. I bowl weekly in 2 leagues, I knit, shop, ride my bike, and do whatever I enjoy. I am not letting Pulmonary Hypertension run my life. This is a blog of LIVING with PH, not dying with PH!!!
