Central Line infection #1 2015

Day #1

I am going to blog everyday of my infection. By infection I mean in my central line in my left chest used to administer my Veletri medication used to control my PH 24/7.  At the end of April my central line began to get red and sore so I had my PH specialist look at it.  She cultured the site and had me begin taking oral antibiotics.  After 2 weeks of the antibiotics the site showed no change and began oozing puss and aching.  So tomorrow morning I am calling my PH specialist and she will admit me to the U of M hospital for IV antibiotics and a series of blood and site cultures. We will rule out a blood infection (I hope!).  If there is a blood infection that means pulling the infected line and getting a PICC line inserted so I can continue getting my Veletri medication. But enough of that talk, I will not get ahead of myself and I will calm my nerves. It is all in God's hands. 

I am taking a long bath to relax tonight.  House is clean and the chores done just in case I have to travel the 3 hours to the hospital in the morning.  That is something all PH'er do in times like these.  I might even pack a bag tonight just to be safe too. It takes time to pack all my medications, dressing kits, clothes and things to do while sitting in a hospital bed for a week.  Then I will have to get my mom to watch my daughter and my animals. PH is more than a disease. It is a life changer, a tumor on my life. I can't do anything without the tumor rearing its ugly face!  

Please say a prayer for me and my family are I am going through is rough time. I appreciate every one of them.   

The year of loss

This has been a year of terrible loss for my family. I lost my Uncle John Short in June of 2014 to a tragic logging accident and May 12 I loss my Uncle Richard Grow to a heart attack.  These losses are hard on me because it makes me think of my own mortality. According to the doctors I should already be dead. My PH should have killed me years ago. I am glad that God has his own plan for my life. He had his own plans for both my Uncles too. I don't need to feel guilty for being alive. I just have to live my life to the fullest and enjoy everything. I need to stop and smell the spring flowers, enjoy spending time with everyone I love and be the best person I can. I need to share memories of those I have lost and love the time I have left on this earth.