I know that I have not posted in more than a year. My life has been wonderful and full of living. I have been enjoying my family, bowling, knitting and riding our motorcycle with the hubby. I decided to post today because it is my 12 year anniversary of going on my IV medication, Flolan and then Veletri for my PH. It has saved my life. I had my Hickman central line placed on January 22, 2002. I started Flolan in the hospital at the University Of Michigan in Ann Arbor, MI. I was admitted in the hospital for 5 days as my doctor increased the Flolan to a therapeutic dose. It was the most frightening experience ever. I was 23 years old, I had a 19 month old daughter and a boyfriend of a year. I was told to get my affairs with my daughter and my life in order because my PH was so severe. I was so sick that I was blue all the time, I couldn't walk around with out getting dizz...
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