Central Line infection #1 2015

Day #1

I am going to blog everyday of my infection. By infection I mean in my central line in my left chest used to administer my Veletri medication used to control my PH 24/7.  At the end of April my central line began to get red and sore so I had my PH specialist look at it.  She cultured the site and had me begin taking oral antibiotics.  After 2 weeks of the antibiotics the site showed no change and began oozing puss and aching.  So tomorrow morning I am calling my PH specialist and she will admit me to the U of M hospital for IV antibiotics and a series of blood and site cultures. We will rule out a blood infection (I hope!).  If there is a blood infection that means pulling the infected line and getting a PICC line inserted so I can continue getting my Veletri medication. But enough of that talk, I will not get ahead of myself and I will calm my nerves. It is all in God's hands. 

I am taking a long bath to relax tonight.  House is clean and the chores done just in case I have to travel the 3 hours to the hospital in the morning.  That is something all PH'er do in times like these.  I might even pack a bag tonight just to be safe too. It takes time to pack all my medications, dressing kits, clothes and things to do while sitting in a hospital bed for a week.  Then I will have to get my mom to watch my daughter and my animals. PH is more than a disease. It is a life changer, a tumor on my life. I can't do anything without the tumor rearing its ugly face!  

Please say a prayer for me and my family are I am going through is rough time. I appreciate every one of them.   

The year of loss

This has been a year of terrible loss for my family. I lost my Uncle John Short in June of 2014 to a tragic logging accident and May 12 I loss my Uncle Richard Grow to a heart attack.  These losses are hard on me because it makes me think of my own mortality. According to the doctors I should already be dead. My PH should have killed me years ago. I am glad that God has his own plan for my life. He had his own plans for both my Uncles too. I don't need to feel guilty for being alive. I just have to live my life to the fullest and enjoy everything. I need to stop and smell the spring flowers, enjoy spending time with everyone I love and be the best person I can. I need to share memories of those I have lost and love the time I have left on this earth.

Winter 2014-2015

This is a winter update from me. It was not a good winter for me.  I dealt with a line infection, IV antibiotics at home, and a new central line placement all before Christmas.  I then became sick with a cold/bronchitis which took me out of commission for he month of January.  

I managed to help my hubby put up Christmas lights because there was no snow in December. It was a great time with family and friends. My bowling team had a little party, then we had parties with my Mom and then Dad's. I always love spending time with all my family. We also had a cookie making parting at the church with all the grandkids. It was special. It was also the first Christmas without my Uncle John. It was sad. His loss has rocked our family hard.

We got record breaking snowfalls and cold temperatures which all but home bounded me until the end of February.  Now that March is here I am feeling great. I am getting out of the house and doing more things. I am enjoy driving my daughter to and from dance and softball practices. I am working on getting more exercise because I put on 12 pounds over the winter.  I believe winters in the north are especially hard on people with breathing and heart issues.  The cold air makes it hard for me to breath and the snow makes walking more difficult too.  

My PH is not the worst so I did managed to bowl pretty good all winter on my leagues. A couple weeks ago I got this great new bowling ball and a new pair of shoes.  I am already bowling better.  I even beat my hubby a couple times! Here's proof!!! LOL 

Spring is opening my heart and mind with the flowers. I am getting out of my funk. I hope everyone else is getting out to smell the flowers and see that there is always a light at the end of the tunnel!

Here are so knitting projects I finished over the winter. Knitting is my passion and I love it. It makes me feel like even though I can't work or make money outside the home due to my illness, I am still giving something of myself to the world that I create with my hands.