Livin' My Life With PH!!

This is a winter update from me. It was not a good winter for me.  I dealt with a line infection, IV antibiotics at home, and a new central line placement all before Christmas.  I then became sick with a cold/bronchitis which took me out of commission for he month of January.   I managed to help my hubby put up Christmas lights because there was no snow in December. It was a great time with family and friends. My bowling team had a little party, then we had parties with my Mom and then Dad's. I always love spending time with all my family. We also had a cookie making parting at the church with all the grandkids. It was special. It was also the first Christmas without my Uncle John. It was sad. His loss has rocked our family hard. We got record breaking snowfalls and cold temperatures which all but home bounded me until the end of February.  Now that March is here I am feeling great. I am getting out of the hou...

Aghhhhhhh!!!! I bowled like shit all weekend. The best part of the trip to Canton, MI was my spending time with my hubby. The lanes were awful and the hotel was small. We went with 2 teams of great women and had fun. We went to the MGM Grand Casino in Detroit together and bowled like crap as a team! Go Muskegon!!! We stopped at a knitting shop that I loved! I went to Ann Arbor to see Dr. McLaughlin my PH doctor. I did fantastic on my 6 minute walk. I did 543 meters! We are going to switch me to Veletri from the Flolan. It's basically the same medication just doesn't need ice and I can mix up to 5 days at once. I am excited after 9 years of mixing my Flolan every single day! I am sooo sick of it! I am ready for spring!!! My mom and I are walking a few times a week and the snow is melting! Life is good!

This is my bowling team at Northway Lanes. My husband Joe and I plus our good friends Bob and Becky. We have been bowling together a couple years. We bowl on Sunday nights on the Mixed Up league. We have alot of fun with all the people and sometimes we actually bowl. My high game on that league is 220! I love doing things with my husband that we both enjoy. It allows us to spend time together and have fun. I love our name "Gutter Guppies" because it fits us. At least once a game one of us, mostly me and Becky, are in the gutter! Hopfully we continue to bowl together for years to come!!