Livin' My Life With PH!!

Day #1 I am going to blog everyday of my infection. By infection I mean in my central line in my left chest used to administer my Veletri medication used to control my PH 24/7.  At the end of April my central line began to get red and sore so I had my PH specialist look at it.  She cultured the site and had me begin taking oral antibiotics.  After 2 weeks of the antibiotics the site showed no change and began oozing puss and aching.  So tomorrow morning I am calling my PH specialist and she will admit me to the U of M hospital for IV antibiotics and a series of blood and site cultures. We will rule out a blood infection (I hope!).  If there is a blood infection that means pulling the infected line and getting a PICC line inserted so I can continue getting my Veletri medication. But enough of that talk, I will not get ahead of myself and I will calm my nerves. It is all in God's hands.  I am taking a long bath to relax tonight.  House is clean and t...

This has been a year of terrible loss for my family. I lost my Uncle John Short in June of 2014 to a tragic logging accident and May 12 I loss my Uncle Richard Grow to a heart attack.  These losses are hard on me because it makes me think of my own mortality. According to the doctors I should already be dead. My PH should have killed me years ago. I am glad that God has his own plan for my life. He had his own plans for both my Uncles too. I don't need to feel guilty for being alive. I just have to live my life to the fullest and enjoy everything. I need to stop and smell the spring flowers, enjoy spending time with everyone I love and be the best person I can. I need to share memories of those I have lost and love the time I have left on this earth.

This is a winter update from me. It was not a good winter for me.  I dealt with a line infection, IV antibiotics at home, and a new central line placement all before Christmas.  I then became sick with a cold/bronchitis which took me out of commission for he month of January.   I managed to help my hubby put up Christmas lights because there was no snow in December. It was a great time with family and friends. My bowling team had a little party, then we had parties with my Mom and then Dad's. I always love spending time with all my family. We also had a cookie making parting at the church with all the grandkids. It was special. It was also the first Christmas without my Uncle John. It was sad. His loss has rocked our family hard. We got record breaking snowfalls and cold temperatures which all but home bounded me until the end of February.  Now that March is here I am feeling great. I am getting out of the hou...

  I want to introduce you to my Spinning Wheel. I got it February 2013. I have got to play with it for almost a year.  I love it!!  It is an Ashford Kiwi. I purchased it through The Woolery . T hey have great customer service.   It came with a lot of different pieces to put together.  I decided to stain my wheel with Mins Wax in a natural color.  I let that dry for a day the then my hubby helped me put it together.  I got a Jumbo flyer kit with my wheel and 2 pounds of wonderful fiber.    Assembled!! This is my first attempt at spinning a 2 ply. It is 100% Alpaca. It was so soft and yummy!! Spinning while watching TV. It is very nice after a long day to just unwind and spin away the day. Falkland fiber.     Here is the Alpaca washed. It fluffed up! I really enjoy the feeling of slowing down and doing something my ancestors did centuries ago. It is a wonderful a...

     Even though I have lived my entire life with a chronic disease I have a life worth living.  Growing up I was "the sick girl" or the "girl who can't do anything".  I felt like I was nothing but a girl that was sick and going to die without anyone remembering anything else about me.  I was tubes, pills, doctors, bills. I had a poor prognosis.  I felt like a lab rat.  I was depressed and scared all the time.  I thought about dying all the time.  I felt alone. That is all in the past.      I am more self confident than ever now.  I am a mother, a wife, a daughter, a sister.  I am a knitter, a scrap-booker, a bowler, a sports fan.  I am strong and stubborn.  I am happy, loving and spontaneous.  I have won trophies and awards.  I am in love and loved.  I am beautiful and amazing.  Everyday I amaze myself even if I never get out of my pj's.  Although I am still sick, I am AL...

I got my 5th hickman central line on Monday. The infection is gone and things are back to normal, at least for me. I am hitting the treadmill big time since summer is just around the corner. I can't wait to go to Florida with the Eagle's drill team.