Livin' My Life With PH!!

Day #1 I am going to blog everyday of my infection. By infection I mean in my central line in my left chest used to administer my Veletri medication used to control my PH 24/7.  At the end of April my central line began to get red and sore so I had my PH specialist look at it.  She cultured the site and had me begin taking oral antibiotics.  After 2 weeks of the antibiotics the site showed no change and began oozing puss and aching.  So tomorrow morning I am calling my PH specialist and she will admit me to the U of M hospital for IV antibiotics and a series of blood and site cultures. We will rule out a blood infection (I hope!).  If there is a blood infection that means pulling the infected line and getting a PICC line inserted so I can continue getting my Veletri medication. But enough of that talk, I will not get ahead of myself and I will calm my nerves. It is all in God's hands.  I am taking a long bath to relax tonight.  House is clean and t...

     Even though I have lived my entire life with a chronic disease I have a life worth living.  Growing up I was "the sick girl" or the "girl who can't do anything".  I felt like I was nothing but a girl that was sick and going to die without anyone remembering anything else about me.  I was tubes, pills, doctors, bills. I had a poor prognosis.  I felt like a lab rat.  I was depressed and scared all the time.  I thought about dying all the time.  I felt alone. That is all in the past.      I am more self confident than ever now.  I am a mother, a wife, a daughter, a sister.  I am a knitter, a scrap-booker, a bowler, a sports fan.  I am strong and stubborn.  I am happy, loving and spontaneous.  I have won trophies and awards.  I am in love and loved.  I am beautiful and amazing.  Everyday I amaze myself even if I never get out of my pj's.  Although I am still sick, I am AL...

I got my 5th hickman central line on Monday. The infection is gone and things are back to normal, at least for me. I am hitting the treadmill big time since summer is just around the corner. I can't wait to go to Florida with the Eagle's drill team.