Livin' My Life With PH!!

Aghhhhhhh!!!! I bowled like shit all weekend. The best part of the trip to Canton, MI was my spending time with my hubby. The lanes were awful and the hotel was small. We went with 2 teams of great women and had fun. We went to the MGM Grand Casino in Detroit together and bowled like crap as a team! Go Muskegon!!! We stopped at a knitting shop that I loved! I went to Ann Arbor to see Dr. McLaughlin my PH doctor. I did fantastic on my 6 minute walk. I did 543 meters! We are going to switch me to Veletri from the Flolan. It's basically the same medication just doesn't need ice and I can mix up to 5 days at once. I am excited after 9 years of mixing my Flolan every single day! I am sooo sick of it! I am ready for spring!!! My mom and I are walking a few times a week and the snow is melting! Life is good!

The next month is sooooo busy. I am bowling in the Michigan State tournament in Canton, Mi and the weekend following that tournament I am bowling the Muskegon Tournament. I am excited. I am also doing fantastic at my weight loss goals. I am down a few more pounds this week after being back on plan 100%. I got the PICC line out and my new Hickman cath put in. It's weird having it in the right side but I am adjusting. Right now life is fantastic!!!

I got my 5th hickman central line on Monday. The infection is gone and things are back to normal, at least for me. I am hitting the treadmill big time since summer is just around the corner. I can't wait to go to Florida with the Eagle's drill team.

After a 3 month hiatus from Weight Watchers I have decided to join again with the PointsPlus program. It's a little different than the other program that WW had but I like that all fruit is free. I am still down 23 pounds from July which in great! I have been going through alot the last 3 weeks. I have an infection in my central line's tunnel and regular antibiotics didn't work so I now have a PICC line in my right arm that I have to run IV antibiotics through twice a day. It's not good for weight loss as I am finding out. I started WW 2 weeks ago and haven't lost a pound. I am not sweating it. I should be done with this therapy soon. It's a royal pain to shower but otherwise it's not too bad. I have been through worse. I have been bowling great with the PICC line, which is great too. I have been really happy lately even with the medical issues. I am looking forward to my Florida trip with the Eagles Drill team that is in July. I w...

Lovin’ My Life with PH By: Jessie Follett When you are a little eight year old girl you have big dreams. Dreams of being a ballerina, a princess or a teacher. You don’t think about going to bed and never waking up again. You don’t think about leaving your family, friends and your favorite Cabbage Patch Kid doll. I did. I was diagnosed with Primary Pulmonary Hypertension in 1988 as a scared little girl that instantly had to grow up. I cried for my mom to sleep with me in case I didn’t wake up. I took all the attention from my little sister who didn’t know what was wrong with her big sister and best friend. My parents divorced and everyone looked at me with those pity eyes. “That poor girl, she’s so young.” I began calcium channel blockers to control my PH throughout my teenage years. I felt like an outcast all throughout school. I couldn’t participate in gym classes, sports or sometimes even slumber parties. I gained weight and used oxygen when I slept. I only had a couple...

August 14-21, 2010, Joe, Michelle, John and I were in Louisville, Kentucky, or as you as it in Louisville, Looyval!! We had a fantastic time. Michelle and I are members of the Muskegon Eagles Auxiliary #668 Ritual and Drill team. We were in Kentucky to preform at the Fraternal Order of Eagles National Convention. Our whole team did a great job and came in 1st and 2ND!! While in Louisville we went to the Slugger Museum. It was great to see how bats are made and even watched them make bats for Derek Jeter! We even got mini souvenir bats to take home. The whole drill team also went on a lunch cruise on The Belle of Louisville, the last steam boat in use. It was a nice lunch and ride, but it was soooo hot! The 4 of us also went to Mega Caverns. It is a cavern under the city that was once used as a bomb shelter and we rode in a tram through it. The whole week Joe and I walked the town and visited with people from all over the country. It was great. Joe and I wanted to do something to rememb...

My baby will be 10 years old on June 14th. I can't believe it. We had a small party for her on sat. and all the family was there. Mom, Dad, Grandma and Grandpa Grow, Grandma Short, Grandma Kathy, Aunt Michelle, Aunt Jodi, Aunt Sherry, Paige, Blake, and Raven. Brianna is growing up so be such a wonderful, caring person. I hope God continues to bless her. She got spoiled this year with American Girl doll toddlers and stroller, clothes, Zhu-Zhu pets, and Webkinz. Brianna even picked out the Monkey on her cake and the lime green frosting! Happy Birthday baby!! Mom and Dad love you sooooo much!!!