I live each day fighting for survival. I have Primary Pulmonary Hypertension. A chronic and deadly disease that I am beating. I don't let it get me down and I live my life to the fullest each and everyday. I love my wonderful husband Joe and my beautiful daughter Brianna. I enjoy knitting, cross stitch, scrapbooking, bowling and spending time outside. Life is the greatest gift from God!
Tuesday, May 11, 2010
My Hickman
This is my Hickman Central line. As of today I have had 4 in the last 8 years. The others were taken out due to infection. They are not too painful to put in, it's the healing time that is painful. Once in, I can't feel it and I live life as normal as I can. I clean the site a couple times a week with a cloraprep dressing kit. I change my lines on a biweekly basis also. My loop under the Tegaderm dressing is to prevent pulling the line out in case I pull on it. I am not suppose to get it wet but with showers it's impossible to not get it wet. On occasion I get a site infection with redness, pain and puss but those go away with antibiotics. I sometimes ketch my lines on everything like chairs, the dog, bowling balls, tables, my own body... It's become a comedy act at home, as my daughter and hubby lovingly call it my leash. All my friends and family are even cautious with me and my pump. I even sometimes go swimming in a pool with my husband holding my pump while I swim and doggy paddle around the pool. The pump is not allowed to get wet so swimming is a no no. I never follow rules! LOL I am not going to let a tube in my chest and a battery powered pump on my hip run my life. I am thankful that the medicine inside the pump has given me my life back, but it doesn't hold me back from being a good mom and wife!
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