I know that I have not posted in more than a year. My life has been wonderful and full of living. I have been enjoying my family, bowling, knitting and riding our motorcycle with the hubby. I decided to post today because it is my 12 year anniversary of going on my IV medication, Flolan and then Veletri for my PH. It has saved my life.
I had my Hickman central line placed on January 22, 2002. I started Flolan in the hospital at the University Of Michigan in Ann Arbor, MI. I was admitted in the hospital for 5 days as my doctor increased the Flolan to a therapeutic dose. It was the most frightening experience ever.
I was 23 years old, I had a 19 month old daughter and a boyfriend of a year. I was told to get my affairs with my daughter and my life in order because my PH was so severe. I was so sick that I was blue all the time, I couldn't walk around with out getting dizzy or passing out. I felt like shit! I felt like my time was short and I was depressed and cried a lot.
3 Months on Flolan and I could walk around a store. I lost 40 pounds because of the terrible diarrhea, a side effect of Flolan. I didn't mind the side effects because I was getting my life back. I started to look up and God was helping me get through it. I could be a better mom to my baby and my boyfriend Joe asked my to marry him!
Sure it took a long time to get back to "normal". I started Revatio and Letairis over the past 5 years and switched to Veletri in 2009. It has not been easy but it has been worth it. I wouldn't change anything to see my beautiful daughter grow into a woman and to be supported and loved by the greatest man I know. Over the years I have went through periods of depression and several central line infects that hospitalized me, but nothing keeps me down. I know God has great plans for me. As long as we fight through the bad times and love and appreciate everything we go through whether it's good or bad, we will see the wonderful life God has given us.
So here is to another 12 years, and more, with a tube in my chest as long as I can continue to breath easy, love hard and live each day to the fullest.
I had my Hickman central line placed on January 22, 2002. I started Flolan in the hospital at the University Of Michigan in Ann Arbor, MI. I was admitted in the hospital for 5 days as my doctor increased the Flolan to a therapeutic dose. It was the most frightening experience ever.
I was 23 years old, I had a 19 month old daughter and a boyfriend of a year. I was told to get my affairs with my daughter and my life in order because my PH was so severe. I was so sick that I was blue all the time, I couldn't walk around with out getting dizzy or passing out. I felt like shit! I felt like my time was short and I was depressed and cried a lot.
3 Months on Flolan and I could walk around a store. I lost 40 pounds because of the terrible diarrhea, a side effect of Flolan. I didn't mind the side effects because I was getting my life back. I started to look up and God was helping me get through it. I could be a better mom to my baby and my boyfriend Joe asked my to marry him!
Sure it took a long time to get back to "normal". I started Revatio and Letairis over the past 5 years and switched to Veletri in 2009. It has not been easy but it has been worth it. I wouldn't change anything to see my beautiful daughter grow into a woman and to be supported and loved by the greatest man I know. Over the years I have went through periods of depression and several central line infects that hospitalized me, but nothing keeps me down. I know God has great plans for me. As long as we fight through the bad times and love and appreciate everything we go through whether it's good or bad, we will see the wonderful life God has given us.
So here is to another 12 years, and more, with a tube in my chest as long as I can continue to breath easy, love hard and live each day to the fullest.
Way to go on 12 years, Jessie!! I'm hoping and praying for another 12 and more for you!! I'm glad you're enjoying your life! :)
ReplyDeleteThank you so much Colleen!!!
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